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Taking aim at cystinosis

“One of my specialists describes it as the feeling of always having the flu,” says Frieda Beilstein. “For a normal person, when you feel lethargic and have all the flu symptoms – it’s kind of like that every day when you have cystinosis. She pauses. “But I don’t really notice, since that’s all I kno

By Will Sloan

Last updated on May 04, 23

Posted on Aug 30, 13

3 min read

Taking aim at cystinosis
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Will Sloan
Will Sloan

Will Sloan is a former full-time journalist / photographer at The Observer.

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